Epilepsy professionals' views on sudden unexpected death in epilepsy counselling: A tale of two countries
Watkins et al. 2024
Presented by Dr. Marco Perulli
2:33 - Counseling Practices for SUDEP:Â Investigating the views of epilepsy professionals in the UK and Norway on SUDEP counseling to compare their attitudes and communication practices.
5:12 - Experience Comparison:Â Comparing the differences in direct experience with patients who died of SUDEP between UK and Norway professionals.
6:25 - Barriers to Communication:Â Identifying common barriers such as perceived low clinical risk, fear of distressing patients, and patient comprehension concerns.
8:35 - Lack of Guidelines:Â Addressing the lack of guidelines or confidence towards communicating about SUDEP, especially in Norway.
10:32 - Cultural Differences:Â Highlighting cultural differences that impact openness towards virtual versus face-to-face communication about SUDEP risks.
Discussion Panel
0:12 - Impact of Guidelines and Advocacy Groups:Â Discussion on how guidelines and advocacy groups influence physician practices and the comparison between the UK and Norway regarding patient activism and guidelines.
1:01 - Role of Epilepsy Nurses:Â The importance of epilepsy nurses in discussing SUDEP and the differences in their presence between the UK and Norway.
2:41 - SUDEP Counselling Practices:Â Reasons for the importance of SUDEP counselling, individual approaches to discussing SUDEP, and challenges in discussing it with adolescents.
4:50 - Factors Influencing SUDEP Discussion:Â Factors affecting healthcare professionals' decisions to discuss SUDEP, including consultation methods and patient characteristics.
7:22 - Ethical and Practical Considerations:Â Ethical considerations in discussing SUDEP, the emphasis on SUDEP over other comorbidities, and practical considerations in risk discussions with patients.
Effect of Providing SUDEP Information to Persons with Epilepsy and their Caregivers
Radhakrishnan et al. 2018
Presented by Dr. Rohan Kandasamy
0:00 - Introduction to SUDEP and Its Risks: Effects of providing SUDEP information to epilepsy patients and their caregivers, highlighting poor medication compliance as a modifiable risk factor.
1:19 - Study Design and Participants:Â This prospective study with a pre-post test design was conducted in northern India, involving 231 participants split into intervention and control groups, with specific inclusion and exclusion criteria.
2:40 - Intervention and Control Groups:Â The intervention group received detailed SUDEP information and standard care, while the control group received only standard care and SUDEP information post-study.
3:45 - Outcome Measures and Results:Â Medication adherence was measured using a modified scale, showing increased adherence in the intervention group, but no significant differences in anxiety, depression, or quality of life between groups.
6:12Â - Strengths and Limitations:Â The study's strengths included its design and real-world setting, while limitations involved self-reported bias, non-randomization, and limited generalizability.
Discussion Panel
0:00 - Behavioural Change and SUDEP Counselling:Â Exploring the impact of SUDEP counselling on medication adherence in patients with epilepsy.
1:09 - Methods of Studying Behavioural Change:Â Comparing the effectiveness of qualitative versus quantitative methods in studying behavioural change due to SUDEP counselling.
3:32 - Ethical Considerations in Patient Counselling:Â Evaluating ethical reasons for informing patients about SUDEP despite lack of evidence for behavioural change.
3:35 - Tailoring SUDEP Information:Â Tailoring information about SUDEP based on patient risk stratification.
13:41 - Counselling on Comorbid Conditions:Â Counselling patients about other comorbid conditions that are potentially harmful and modifiable.